Archived ARPKD/CHF Newsletters 1996 to 2000
December 31, 2013
THE BEST NEWSLETTER ARTICLES FROM 1996 TO 2000
Newsletters-The Best from 1996 to 2000
This 75 page document is a combination of newsletters made available to families and professionals from 1996 to 2000. Outdated and irrelevant articles have been deleted. In a subtle way they provide a brief history of ARPKD/CHF family involvement.
Thank you to Dr. Bernard Kaplan and Kevin E. C. Meyers, M.D., at The Children’s Hospital of Philadelphia, Philadelphia, P.A. for providing the ARPKD/CHF Alliance medical review of the newsletters.
A very special thank you to Donna Robbins, Assistant Editor, an ARPKD/CHF mother, who worked tirelessly and spent countless hours typing and formatting each issue, to provide families this information. These newsletters provided the first real educational information, resources and support to ARPKD/CHF families ever, and would not have been possible without her help.